
Over the last 34 years, I’ve had my share of bizarre symptoms—some intrusive but manageable, some temporary, and some terrifying.
But these last few months have taken me somewhere I never expected. And that’s saying a lot when you live with MS.
They say the gut is the second brain. There’s growing evidence connecting digestion to multiple sclerosis—an interruption of signalling between the brain and body. But knowing that intellectually is very different from living it.
I developed SIBO—small intestine bacterial overgrowth—which is not uncommon in MS. Left untreated, it can seriously disrupt the gut. In my case, it was mistreated, and the inflammation became overwhelming. I reached a point where I couldn’t digest anything. It was terrifying. I had to stop eating and lost twenty pounds.
With the help of a wonderful healthcare practitioner, my gut has finally stabilized, and I’ve begun reintroducing foods. It’s a slow process—possibly six months or more. Right now, I still can’t tolerate fats, starches, or sugars. No garlic, no onion—none of the foods I’ve enjoyed my whole life.
Twelve years ago, Stephen and I made major changes to our diet. We eliminated gluten, sugar, dairy, and most grains, and focused on vegetables, greens, and organic proteins. It was labor-intensive, but it gave me more energy and reduced inflammation. It felt like we were doing everything right.
But when the communication between the brain and the gut breaks down, everything can unravel.
This journey has taught me so much about my body. I chose not to take pharmaceutical drugs, and for the most part, I’ve maintained a good quality of life, even with reduced mobility. But MS has a way of reminding you that you’re not fully in control.
And this time, it shook me.
I think what I’m really talking about is uncertainty—and how to live with it.
I’m used to being the support person. This time, I needed more support than I ever have. The experience felt traumatic. I’ve had to slow down, breathe more, meditate more, and actively seek reassurance just to get through the daily discomfort, the fear, and the setbacks.
I just want my life back.
And yet, I know I wouldn’t have made it through this without the support of my husband and my healthcare practitioner.
Sometimes, being strong means letting yourself be held.
Have you ever felt like this? Feel free to share.













